Many people are working hard to find answers for people with Lesch-Nyhan disease. Several foundations focus their attention on this condition. They are working to understand what is going on the brain, and especially how to improve our treatments. The ultimate goal for all is to find a cure! This effort cannot succeed without help. Many people want to know what they can do to help. If you want to know more, contact one of the foundations below.
Mauro Baschirotto Institute for Rare Diseases (BIRD)
Costozza Vincenza, Italy
The Lesch-Nyhan Syndrome Children's research Foundation
210 South Green Bay Road
Lake Forest, IL, 60045, United States