Because Lesch-Nyhan disease is so rare, it can be difficult to find a care provider who is experienced in managing the problems that may arise. Fortunately, there is a growing network of experienced care providers.

If you are a patient or parent and you need help finding an experienced care provider, use the menus on the left. If you are a care provier and wish to be added to our list, please contact the authors with your name, contact information, and a brief description of your experience.