This web site is managed by several individuals with special expertise in Lesch-Nyhan disease.
Dr. H. A. Jinnah is a Professor of Neurology and Genetics at the Emory University in Atlanta (USA). He has taken care of many children and adults with Lesch-Nyhan disease. He also has a research program devoted to understanding the biological basis of the neurological and behavioral changes in Lesch-Nyhan disease and other disorders involving dystonia.
Dr. J.E. Visser is an Assistant Professor in Neurology at the Radboud University Nijmegen Medical Center in Nijmegen (The Netherlands) and has also a neurology clinic in Breda (The netherlands). He has special interest in diseases of the basal ganglia - including Lesch-Nyhan disease. He is currently involved in research concerning Lesch-Nyhan disease and Parkinson's disease.
The authors can be reached here.
The authors greatly acknowlegde the help of several colleagues who translated the webpage into different languages: